20,000 international voices share how they want their DNA information used

1 September 2017 09:00 GMT A project to gather public opinions on how genetic data is used and distributed has gone global The Wellcome Genome Campus and Global Alliance for Genomics and Health (GA4GH) have gone global with a project to explore public attitudes ...

Global efforts to improve human genomic data access and reuse

Repositive is working alongside global organisations to provide the tools and best practices for data sharing in genomics research to help researchers help patients faster. Good data management is not a goal in itself, but rather is the key conduit leading to knowledge discovery and ...

Submitting genomic data to repositories: a necessary nightmare?!

One of the primary goals of Repositive is to drive efficient and ethical genomic data sharing. However, in my travels, through discussions with researchers and interviews with our users, I have come across much apathy and negativity towards the sharing of genomic data. After digging ...

Your DNA – your say! What do people think about sharing their genomic data?

It is really important to find out what genomic data donors all over the world think about sharing their data. Do they actually want it to be shared, and if yes, with whom? TORONTO, CANADA (May 24, 2016) — The Global Alliance for Genomics and Health ...

3 April 2016: GA4GH global engagement workshop, launch of BRCA exchange and… cherry blossom!

Oringally published on the DNAdigest website: 4-7 April, Kyoto: ICHG2016 The 13th International Congress of Human Genetics 2016 (ICHG2016) is currently taking place in Kyoto. This congress is the oldest and the largest meeting of human geneticists in the world: the first meeting took place ...